The diagnosis was shocking and devastating to our entire family. Our little boy, who had done so little in the world so far, was set against a disease that is terrible and vast in scope. The feelings you go through as a parent at a time like that are indescribable. They are crushing and terrifying. But, he needed strong parents, and so that is the mask we donned at the time.
Since then, Kieran has spent many, many days and weeks in the hospital. In June of 2013, he was deemed NED (No Evidence of Disease). This is a day that should be full of light and hope. And it was for a short time. But the battle is far from over. There are residual effects; side-effects from the medicine that is saving him and allergic reactions to be cautious of. These various effects and reactions have led to more hospitalizations, including a bout of seizures that had Kieran in the pediatric intensive care unit...still only 2 years old.
Kieran will be 4 years old on April 24th of this year. He is, from the outside, a very normal little boy. He has battles still, but he is closer to the end of the fight. We hope, in a little over a year, to be through with the chemotherapy that is such a regular part of our lives, and that Kieran will begin to know a life without daily meds and weekly therapies. This is our hope...our goal...our fight.