Makenna (2012)

Update: February 2015
Makenna Eden Johnson was born on September 21, 2004. She had several rare brain disorders which led her to have major physical and mental delays. At 2 years old she had half of her brain removed due to seizures that were taking over every normal function. No matter what obstacle she faced in her life, the smile never came off her face. She overcame every single sickness, disease, and hurdle that was thrown her way with a beautiful innocent happy disposition. She lived loudly for just under 10 years and received her ultimate healing when she danced into Jesus arms on August 20, 2014. Makenna taught us more in a decade than most people learn in a lifetime. Because of her, we learned that different is beautiful...not less. She also taught us to live loud and to never give up no matter how tired or sad we are.

Our goal now is to spread her story and continue living the way she taught us to. We love and miss you so much Kenna Bear. We will forever be expecting miracles. We will see you again one day!

Update: April 2014

Makenna Eden is 9 years old! She has had a busy year since last year's Kenna's cup. There have been both good and bad things going on but the end result is always the same.....Makenna is in love with life and we are in love with her!

In the past year she has had 4 hospital stays including a serious 2 week stay in ICU where the doctors told us that she was brain dead and it was time to say goodbye. A simple infection turned deadly when it entered her blood stream and ended up septic. She was on life support for days and we all kissed and hugged her and said our heartbreaking goodbyes. When the doctors turned the ventilators off, Makenna amazed everyone when she breathed on her own and once again proved to everyone that the doctors don't have the final word when it comes to her life. She slowly came back to life and even another serious hospital stay a month later with two deadly blood viruses....were fought and won by our miracle Makenna. The smile on her face and the giggles that constantly come out of her mouth remind us all just how precious life is and how it can change in seconds. We thank you all for your unending prayers and support and can not begin to tell you how much it has helped us over this past year. We look forward to another year with Kenna's Kids and can hardly wait to show off OUR Makenna and get to know all the new faces in the Kenna's Kids family.

God bless!

Matt, Marianne, Micah, Makenna, and Marlee Johnson

Update: April 2013

Makenna Eden is an eight year old little girl with a smile that will melt your heart. She has been through a lot in her short lifetime, but is still a very happy and carefree little princess. Makenna suffers from intractable epilepsy and suffers from daily seizures, brain damage, developmental delay, and a multitude of physical issues.

Since the 2012 Kenna's Kids tournament, she has shown improvement in a few areas. She has learned a few more signs, such as "sleep" and "hungry." This has helped her both at school and at home. Kenna's walking has improved significantly as well. She is still not able to walk without assistance, but with the help of holding a parent or teacher's hand, Kenna is able to get where she wants to go....which is usually her brand new pool that was installed late last year. She is receiving water therapy and gets great sensory feedback from being in the water. It's her happy place. She also gets around town a lot easier with the valet seat that was installed in our minivan. It allows us to open the door, rotate her seat, and lower it down to wheelchair level....with just the push of a button. That has been a HUGE blessing!

We are grateful for each day that we have with Makenna and hope that she continues to show improvement.

Our family is eternally grateful to the entire Kenna's Kids Family for all of the love and support that you have shown us since we first met.

God Bless and Thank You Again,

Matt, Marianne, Micah, Makenna, and Marlee Johnson

Makenna's Story...

Makenna was born September 21, 2004. Throughout her short life, she has been through more than we could have ever imagined. She is seven right now and does not walk, talk, feed herself, etc. She has been diagnosed with several things. The primary diagnosis for a long time was CFD (cerebral folate deficiency).

This causes seizures and developmental delay. The second thing she was found to have was areas of Cortical Dysplasia in her brain. In other words, areas of "dead brain". Her intractable epilepsy (seizures unable to be controlled by medicine) forced the doctors to take drastic measures to save her life. She has had four craniotomies and by the time it was all said and done, almost all of the right side of her brain is gone.

Each new day we have her with us is a miracle.

In August of 2014, this beautiful little girl sadly lost her long battle to this terrible disease.