Thalia is our 12 year old daughter. She got sick right before Christmas, December 2015. We took her to her pediatricians office and they thought it was a virus after a negative strep and flu test. She continued to run fever and was getting worse. We took her to the ER where they diagnosed her with Epstein-Barr Virus (Mono), then transferred her to Cook Children's Hospital in Fort Worth due to other abnormal lab results. After numerous tests and ending up in ICU on oxygen, Dr.'s discovered she had Hemophagocytic Lymphohistiocytosis (HLH). HLH is a life threatening blood disease. They immediately started her on steroid and chemotherapy treatments. She improved and was sent home 2 weeks later.
After being home less than 2 weeks she had a relapse and was care flighted back to Cook's in Fort Worth. Her treatment was started over and she was given even more steroids and chemotherapy. She had to stay local for 2 months for very close monitoring. We stayed at the Ronald McDonald house and would go back and forth to the hospital daily. She is at home now but will continue chemo and steroid treatments for the next 28 weeks, and will have weekly clinic appointments. Thalia also has Type 1 Diabetes, Celiac Disease, and Juvenile Idiopathic Arthritis. She is our hero!